Patient Safety and Young People

Ilene Corina, President PULSE of NY addresses young people at
Pride for Youth Coffee House, Bellmore NY.
 
Pride for Youth is an advocacy service for lesbian, gay, bisexual and transgender (LGBT) youth under the age of 21. On November 11, 2011 Ilene Corina spoke at their coffee house to approximately 50 young people and shared stories about transgender people who avoid getting much needed healthcare because of either their embarrassment of their body, insecurity about how they may be perceived or because of past experiences of insensitivity to them by medical professionals.
 
“Medical professionals are not trained in the specific needs of patient centered care or compassionate care to their transgender patients” Corina explained to the group. “It’s up to each of you to advocate for each other and help each other through the healthcare system and make sure your needs are met.”
 
Corina’s presentation was met with questions about how they can get involved more to learn about advocating for each other. The Glossary of Transgender Terms recently published by the Long Island Patient Safety Advisory Council was distributed so young people can share them with their medical professionals and feel that they are doing something to help educate the profession.
 
Note: A new field guide from the Joint Commission urges US hospitals to create a more welcoming, safe, and inclusive environment that contributes to improved health care quality for lesbian, gay, bisexual, and transgender (LGBT) patients and their families.

National and Local Leaders Speak on Health Disparities and Diversity

National and Local Leaders Speak on Health Disparities and Diversity
September 25, 2011
By Cora Lee Picone
PULSE of NY

(September 30, 2011) This past Sunday members of the community gathered for an informal discussion about Patient Centered Care at the South Nassau Unitarian Universalist Congregation in Freeport, NY. PULSE of NY welcomed Amy Wilson-Stronks and Dr. Terri Ann Parnell to lead the discussion. Amy formerly worked for the Joint Commission and is now an independent advocate and consultant.  Dr. Parnell has a background in nursing and is now the Associate Chief Diversity and Inclusion Officer for the North Shore-LIJ Health System in the Office of Diversity, Inclusion & Health Literacy.

The first topic of discussion was the existence of multiple factions of health advocacy. Amy explained that there are three main focus points: language access and culture centered care, health literacy, and physical communication barriers. Language access advocates focus on deaf patients and English language learners. Health literacy, which is defined as an individual’s ability to understand and use health information, is an issue has been embraced by healthcare providers and policy makers. Unfortunately, language access has not received the same support. Physical communication barriers, which often require the assistance of speech-pathologists, receive the least amount of attention.

The main topic of the session was how to achieve patient centered care.  Dr. Parnell reminded us that the goal is partnership which cannot be attained without effective communication. We need to encourage patients to speak up and train service providers to feel comfortable asking questions. The most significant impediment is shame or embarrassment which keeps patients from asking questions and prevents doctors from admitting that they are uninformed about a specific topic for fear of losing the respect of the patient.

Amy asked the audience if anyone had made complaints to a health care provider in the past. Many audience members brought up problems they had encountered while trying to do so: medical professionals’ refusal to engage in dialogue, not knowing how to confront the issue, and the lack of access to professionals.

Amy asked the audience “Does everyone know how to engage a provider with a question?  Do you know who to call?” Many participants were unsure. One person shared a past experience that involved significant communication roadblock. She tried to contact a healthcare provider in order to obtain an answer to a question. She could not reach an actual human being and was forced to navigate the elaborate answering machine system. Even emailing was unhelpful because it took a week to receive a response. This story demonstrates why it can be so difficult to make a complaint: even communication about non-contentious issues is arduous.

Amy informed the audience that any institution that is accredited by the Joint Commission has a complaint hotline and Dr. Parnell reminded everyone that they can always take a hospital complaint to the administration department. Both Dr. Parnell and Amy encouraged the audience to be persistent about complaints. Many people believe that the problem is indifference on the provider’s part. In most cases, providers are simply overwhelmed and short on time. Dr. Parnell mentioned opposite side of the issue which is that many members of medical staff do not speak up when they believe something was done incorrectly or mishandled because they fear retribution.

Following a comment made by an audience member, the conversation turned to the issue of language access. A woman shared an experience she had when she realized that a fellow patient needed a translator but did not ask for one and instead pretended that she understood a doctor’s explanation. Many patients who require translators are too intimidated to ask for one or simply don’t know that they have the right to request one. An interpreter in the audience confirmed this and added that even though the Joint Commission requires providers to make use of interpreter’s services, they frequently don’t. There is no way for the Joint Commission to enforce this regulation.

Amy responded that the Joint Commission is aware of this because they completed a national study on hospital compliance with translation services and the results were “abysmal”.  She pointed out that the greatest barrier is often prejudice; reminding the group that discrimination exists in healthcare. Amy said that it will be a long time before language access is truly accepted due to the common attitude that patients “should just learn English.” Healthcare providers need to be educated on cultural competency and taught how to ask the appropriate questions. An audience member who works in healthcare mentioned that many providers are unaware of their own privilege which protects them from experiencing discrimination and prejudice thus leading them to believe that discrimination does not occur in their facility. He shared that he benefitted tremendously from a workshop given by the local org, Erase Racism and encouraged others to take advantage of that resource.
Amy then shared a personal story to demonstrate that everyone can face communication barriers in healthcare regardless of social class, education level, and language abilities. Her father, even as a practicing physician, faced communication barriers and difficulties while hospitalized. She reminded us that hospitals are required to allow patients to have a supporter with them, someone who can speak up for them when they are unable to do so themselves. She clarified that a supporter is not the same as an interpreter and that patients in need of language services are allowed to have both.

Another topic that was addressed was role of the interpreter. Interpreters try to be neutral but when they get to know patients, they often overstep and take on the role of advocacy. Both Dr. Parnell and Amy agreed that this is inappropriate. Dr. Parnell stated that interpreters should be unbiased. Their role is not to infer. Amy said that while combing advocacy and interpretation is not a good idea, it is always appropriate to mention concerns or complaints to an interpreter because as an employee they are likely to know who is capable of addressing the issue. Amy and Dr. Parnell also mentioned that interpreters can report violations or problems anonymously to the Joint Commission via letter. Ilene volunteered to deliver such letters to the Commission personally if the interpreters were concerned about doing so.

Amy stated that it is important to repeat personal accounts of communication mishaps or barriers as well as complaints. Health care providers are frequently moved by stories but often believe that it doesn’t happen in the facility that employs them.  Ilene Corina, President of PULSE of NY, brought up an important method of avoiding miscommunication called the Teach Back Method. Doctors are encouraged to ask a patient to repeat back instructions of explanations allowing them to determine whether or not the patient actually understood what was said. Dr. Parnell agreed that this method is useful and important because many patients feel overwhelmed by the amount of information received before they are discharged. In her view, a pressing issue with the Teach Back Method is training doctors and staff to present the questions a relaxed manner so that the patient doesn’t feel like they are being quizzed.

A member of the Nassau County legislature also attended the event.  As a PULSE supporter, David Denenberg urged the audience to get involved with the local government by contacting representatives and the county Board of Health. The changes we want to see have a greater chance of being achieved if our local government aware of our wishes and joins forces with grassroots organizations like PULSE.

The personal anecdotes shared by audience members demonstrate that there is still a long way to go before patient centered care is achieved. It is essential that community members continue to engage professionals and providers in dialogues. Events like this encourage such dialogues. PULSE plans to continuing hosting similar events with the hope that they will equip patients with the confidence and knowledge seek a respectful dialogue with their healthcare provider.

For more information contact PULSE of NY (516) 579-4711

PULSE of NY Fundraiser a Huge Success!


Board member John Bilello
sells chances at the 50/50
The PULSE of NY fundraiser; “Patient Safety Isn’t Funny but Laughter is the Best Medicine” was a huge success at the Brokerage Comedy Club with almost 100 attendees showing up to hear 5 local comedians.  Many guests left their troubles at the door as the sound of friend’s, colleague’s, and families’ laughter filled the lounge.  Following the 90 minute show many guests expressed their satisfaction by stating “I hope you do this every year”.   The night ended on a high note when nineteen raffle baskets and fourteen gift cards were given out followed by the 50/50 drawing after the show. In light of this success, PULSE of New York hopes to establish Comedy Night as a yearly event.
Board member Charles Cal
thanks everyone for coming


Board member Leslie Farrington  
sells raffle tickets








To see more photos of the evening visit PULSEofNY Slide Show



Advocate Training

Rick Popovic of enhancedCare MD
and Ilene Corina
(Wantagh NY, September 2011)  Ilene Corina, President PULSE of NY and Patient Safety Advocate held a Family Centered Patient Advocacy training at enhancedCareMD in Rochester NY on August 30; just in time for the start of the much anticipated program servicing the people of Rochester and surrounding areas. EnhancedCareMD will offer better patient / provider relationships through phone calls, e-mails and more timely appointments.

The nurses and community patient’s advocate who would be called upon through this elite service, were taught about patient safety and areas where hospitals may fall short of safe care.  Falls, infections, health literacy, medication and surgery safety were just some of the topics addressed. Difficult role playing scenarios often stumped participants and encouraged discussion about the importance of communication as well as past experiences and concerns.
Rick Popovic, Executive Vice President of enhancedCareMD played the part of an aggressive doctor speaking only to the advocate and rushing her to sign a consent form.  The gentle nurse of 32 years, who played the advocate, struggled with the words to stand up to the doctor.  She has always been taught to do and accept whatever the doctor says.  One nurse in the room, also with over 30-years experience, suggested that nurses were taught for years to stand when a doctor enters the room.  Participants practiced with an intensity that is sure to make them both thorough and sensitive to the patient’s needs.
Although there are different levels of care at enhancedCareMD, patient advocacy services are growing. An extra set of eyes can help ensure the patient’s safety.  This training aligns with the mission of PULSE of NY: to educate and advocate for safe, quality care.    Nurses in the patient advocate role are encouraged to be an extension of the patient. In the PULSE of NY training they are advised to avoid using their nursing skills because doing so can easily lead to overstepping their bounds as advocates.  “The nurse advocate has the knowledge to recognize when more care or further explanation is needed but should not take the place of the patient / provider conversation” explains Ilene Corina who has been teaching Family Centered Patient Advocacy since 2006.  “The nurse as an advocate shouldn’t be that different than a person with no medical background advocating”.  

The Faces of Medical Error...


Left to right, Dr. Leslie Farrington,
 Charles Cal, RN, Steven Pegalis ESQ.
On August 29, 2011 PULSE of NY sponsored an evening of education and dialogue at the South Nassau Unitarian Universalist Congregation, Freeport Long Island.  The topic was the value of the Informed Consent and the concept of Shared Decision Making process that impacts outcomes in medical care.  The video was a 45-minute movie called The Faces of Medical Error…. From Tears to Transparency is the story of Michael Skolnik, a 25 year old man from Colorado who died in June 2004 following unnecessary brain surgery.
 
His parents, Patty and David tell the story of Michael’s life and the care leading to his death with nationally recognized patient safety experts sharing their views. Three years before his death Michael fainted and multiple brain scans showed a non-life threatening cyst. But their consult with a neurosurgeon and his subsequent advice indicated that this was something serious that needed immediate interventions - surgery. Of note, is that this level of surgery was unnecessary and not consistent with the recommended guidelines in the clinical research. 
Michael never recovered. He suffered permanent brain damage and finally after three years of suffering the negative consequence that included nosocomial infections, he succumbed to his injuries and passed away with his parents at his side. During that time, his parents learned that the neurosurgeon was at fault and this case has since been utilized as a learning tool to educate others on transparency in medical care. In Colorado, the Michael Skolnik Medical Transparency Act was passed in 2007 and makes malpractice judgments part of the public record. 

The 45 minute panel discussion following the video was moderated by Charles E. Cal, RN, MS, MBA, CPHQ, Vice President of PULSE of NY. Panelists consisted of  Dr. Leslie Farrington, a gynecologist in private practice in Freeport NY and Steven Pegalis Esq., Founder and Senior Partner, Pegalis & Erickson, LLC., Great Neck NY.
Dr. Farrington explained that a doctor must have a conversation with the patient and when appropriate the family.  Mr. Pegalis agreed and explained physicians are required to protect the public.  Discussing the risks and alternatives with the patient keeps them thinking about what the risks actually are.  Mr. Pegalis also stressed that all doctors, as in any other situation, must be held accountable for their behavior. 

A passionate discussion between audience members and panelists ensued.  An audience member responded that the family was not informed of the alternatives including other doctors or other procedures and that Michael may be alive were they given an alternative of if they were made aware of what the literature recommendation beforehand. Another person questioned if Michael was old enough and capable of make his own decisions especially since he was under stress.

It was agreed that while a great deal was left out of the events surrounding the case, that it was a sobering reminder that medical errors, adverse events or negative outcomes in medical treatment are always very complicated. 

Through such discussion with the community, PULSE of NY fulfills its mission of engaging and educating the public and communities with the goal of progressing towards safer patient care experiences as patients interface with the health system.

This level of dialogue encourages the community to become informed and to proactively partner with health care professionals, paraprofessionals and hospitals, etc. in their care. By bringing together various experts, PULSE of NY, the grassroots patient safety organization,  is able to play a much needed role as they lead a discussion on informed consent and the importance that shared decision making brings towards improving communication and ultimately patient safety.

Sponsors of this event included:





PULSE of NY Update


Mirna Cortes-Obers
PULSE of NY offers patient safety education in Spanish and English!

Mirna Cortes-Obers has been working at the Central American Refugee Center (CARECEN) since 1991. Since 2008, as part of her work at CARECEN, she has been a health advocate for the Hispanic community. Ms. Cortes has assisted individual Hispanic immigrants with obtaining access to affordable and quality health care by ensuring that they are provided both language and financial assistance as required by law. Ms. Cortes has degrees in Public Relations and Sociology and has completed courses toward a Master's Degree in Humanities.


Choosing a Hospital or Doctor

A common concern that is shared with PULSE of NY is how to choose a doctor or hospital. It makes us feel vulnerable when we have a choice and fear we may make the wrong one. So how should we choose?

Web MD Suggests look for a hospital that:
  • Is accredited by the Joint Commission.
  • Is rated highly by State or consumer or other groups.
  • Is one where your doctor has privileges, if that is important to you.
  • Is covered by your health plan.
  • Has experience with your condition.
  • Has had success with your condition.
  • Checks and works to improve its own quality of care.
Choosing a doctor is a difficult task too but an important one.


Choosing a doctor is one of the most important things you will do in your life. You will trust this person for his or her expertise, advice and to administer treatment that may save your life.

Try to avoid picking a doctor at random from your health plan's list or out of the phone book. In a recent Consumer Reports survey, people who found their physicians through someone they trusted--a friend, a family member, or another doctor--had the most favorable experiences. (We found a similar phenomenon in a 2004 survey of consumers who visited mental-health professionals.)

If you're picking a doctor to care for a specific condition, ask about how often he or she treats cases similar to yours. Patients we surveyed who took this step were more satisfied with their care. You can also ask the doctor about specialty board certification, which requires advanced training and the passing of rigorous tests.

No matter what hospital we choose, it’s important to remember good things come out of every hospital. Just the same, every hospital has the potential to cause an unplanned outcome or even an injury to a patient. It is therefore just as important that the patient and the family or friend, is also prepared with important information. See our Quick Guide to Patient Advocacy



Helpful Information:





To contact PULSE of NY for help as an advocate for a family member or friend or for a speaker or program, call (516) 579-4711.

If you are receiving this as a forward and want to be added to our e-mail update go to PULSEUpdates and sign up.

PULSE of NY Brown Bag It

PULSE of NY Brown Bag It
Another Huge Success!

Wantagh, NY- PULSE of NY recently held its sixth “Brown Bag It” event on the south shore of Long Island.  Community members were encouraged to come to the Freeport Memorial Library between the hours of 10:00 AM and 1:00 PM on Friday June 10, with all their medications, vitamins and supplements.  They were greeted by Paramedic Kyle Schuessler who took their blood pressure and showed them how to record their medical history.  They were then seated at a table with a faculty member, Pharmacist and two to three pharmacy students from St. John’s School of Pharmacy.
The Pharmacist reviewed medications, answered questions about interactions, side effects and generic brands for almost forty community members while students looked on and gained insight to the questions and concerns their patients and customers have.  Friends, family and neighbors came together but were offered private consultations at one of the six tables.  Medication specialists were there to print out information on medication and diet for diabetics trying to avoid medications. 
Following the event, faculty debriefed with the students about their experience and the response, once again, was overwhelmingly positive.  Students agreed that they should be spending this time with their patients but because of time restraints find it difficult. 
Please keep your eyes open for our next “Brown Bag It” event!


Have you received this message as a forward?  Keep up with PULSE of NY by signing up for our Updates:  Receive PULSE Updates and Patient Safety News

 
Make a donation to PULSE of NY and help keep our costs for services low or free:  By credit card go to Donate Now,  or send a check or money order to PULSE of NY, PO Box 353 Wantagh, NY 11793-0353


Family Centered Patient Advocacy Training

PULSE of NY and North Shore-LIJ Team Up for Patient Advocate Training

Barbara DeVoe explains the
procedure to the group
           WANTAGH, NY -- PULSE of NY recently held its second annual Family Centered Patient Advocacy Training class at the North Shore-LIJ Health System’s Center for Learning and Innovation (CLI) and its high-tech Patient Safety Institute (PSI), attracting a group of 15 community-minded individuals from the region and out-of-state. 
           The full-day training covered the basic information about how to become an effective patient safety advocate for family members and friends.  The motivation for attending the course varied --some participants were considering a career change and others who had some experiences advocating for family or friends in a healthcare setting wanted more information to sharpen their skills.  The course was taught by PULSE board members Charles Cal, RN, MBA, who is also director of program evaluation at the North Shore-LIJ Krasnoff Quality Management Institute, and Leslie Farrington, MD, a gynecologist of Freeport, along with Barbara DeVoe, DNP, director of clinical education programs at CLI’s Patient Safety Institute. Ilene Corina, president of PULSE of NY, helped organize the program and has taught similar trainings.
Barbara DeVoe speaks to the group
following a simulation
The Family Centered Patient Advocacy Training class combined lectures, interactive sessions and hands-on training at the PSI, which uses computerized mannequins as patients as teaching tools in a realistic healthcare setting.  The PSI houses high-tech simulation labs resembling hospital rooms and feature life-like “patient simulators” that respond like real patients.  The facility – one of the largest of its kind in the country – is used to train doctors, nurses, medical students and other healthcare
professionals to hone their clinical skills to prevent medical errors.

           Using the simulation lab, participants had an opportunity to interact with clinicians and practice their communications skills when a doctor or nurse didn’t wash their hands, answer their questions or follow hospital protocol.  The training was videotaped and the rest of the group watched from a nearby classroom on a large screen as the situation unfolded.  After the scenario, participants joined the group for a debriefing.
            “I learned a tremendous amount,” said David Wiesenberg, who traveled from Maryland the night before to attend the class.  “The course gave me a new perspective on doctor-patient communication; I learned more than I anticipated.”   Mr. Wiesenberg had an opportunity to practice his skills in the hospital room as an advocate for “Barbara” the mannequin patient who was preparing for knee surgery.  Barbara was scared and crying and didn’t understand the consent form.  The physician, played by an actor from the center, handed the consent to Mr. Wiesenberg who was going to help the doctor explain to a crying patient about her upcoming surgery.
           “The signed consent form indicates that the doctor and patient have had the discussion about the procedure that allows the patient to make an informed choice to have it done," explained Dr. Farrington at the debriefing. “The doctor, not the advocate must explain the consent form to the patient." 
Another participant, Mary Brower from Syosset, said, “This program is an eye opener for anyone who could end up as a patient or an advocate for a loved one.”  Ms. Brower’s son was recently diagnosed with a serious genetic disorder and has spent countless hours advocating on behalf of her son and other family members.
“Everyday lives are saved by the people who work in our healthcare system, and in most cases, outcomes are wonderful,” said Ms. Corina.  “This advocacy training gives non-clinical people the tools to help ensure the best possible outcome for their loved ones.”
           Family Centered Patient Advocacy Training began in 2006 as an offshoot for PULSE of NY, when it published Family Centered Patient Advocacy, A Training Manual.  PULSE of NY has been conducting patient safety education in the community since1996, when group members began educating the public on New York State Physician Profile information, which became available to the public as law through the New York State Patient Safety Center in 2000.  In addition to all-day courses, the PULSE of NY provides patient safety education for the community as well as advocacy training for one to three-hour classes.  The program can be brought to community groups or held at the North Shore-LIJ’s facility.  Workshops are developed based on the needs of course participants.
To learn more about Family Centered Patient Advocacy Training or future trainings, visit: www.pulseofny.org or call (516) 579-4711.
For more information about CLI’s Patient Safety Institute, visit: http://www.northshorelij.com/NSLIJ/The+Patient+Safety+Institute

# # #

PULSE of NY Update June 6, 2011




Join Dr. Leslie Farrington for a discussion and lesson in the Doctor Patient Partnership:
Dr. Leslie Farrington, gynecologist and instructor in PULSE of NY Family Centered Patient Advocacy, will lead this FREE interactive seminar to empower participants to optimize health outcomes for themselves and others.
WHEN: Wednesday, June 8, 2011 at 8pm
WHERE:La Mystika 1812 Merrick Rd, Merrick
RSVP: 516 377 0985
Join a dinner discussion beforehand at Montana'sin Freeport 13 Atlantic Avenue, Freeport, N.Y, 11520  at 6:30 PM.  RSVP by Noon on Wed 6/8 for reservations.  Call (516) 579-4711 or e-mail  icorina@aol.com and come enjoy an informal dinner and discussion about communication to be continued at the workshop in Merrick!
For more information call: (516) 579-4711  or (516) 377-0985

BROWN BAG IT!
Friday June 10, 2011  Time 10:00 AM - 1:00 PM  Bring your medication to the Freeport Public Library  and meet with faculty from St. John's School of Pharmacy and learn  about the medication you are taking.  Include vitamins supplements and
herbs.  Get more information from this flier.  Reservations get priority seating and we already have one full seating filled!

SUPPORT GROUP AND DISCUSSION
Survivors of medical injuries and families are invited to gather for friendship and a discussion. 
WHEN:  Sunday June 12, 2011 3:00 - 5:00 PM
228 South Ocean Ave, Freeport LI NY
RSVP call (516) 579-4711
Bring a snack to share.
Survivors include:  Misdiagnosis, surgery errors, hospital acquired infections and more. 

 News Worth Sharing
1 in 3 patients harmed during hospital stay

One-third of hospital patients experience adverse events and about 7% are harmed permanently or die as a result, according to a study that detected patient safety problems at a far higher rate than other methods.  Read more here; http://www.ama-assn.org/amednews/2011/04/18/prl20418.htm

What is Collaborative Law and why aren't we seeing more of it?  Learn about Collaborative Law by Kathleen Clark, PhD, JD, MAM, The Collaborative Continuum Associated Adverse Events 
 ♦
Video Based Simulation Training: a computer-based, video-simulation training program on infection control practices for clinicians, health professional students, and patient advocates.  Read more here;  Partnering to HealTeaming Up Against Healthcare Associated Infections 
 ♦
AAP Encourages Pediatricians to Admit Errors:
Patient safety has become one of the key issues in modern medicine, particularly in pediatrics, but clinicians need to go beyond error prevention and be willing to admit when errors occur, according to a policy statement in Pediatrics.  Read more here; http://e2ma.net/go/7089644180/208580199/223311617/1408045/goto:http://www.medpagetoday.com/Pediatrics/PreventiveCare/26757
 

PULSE of NY is saddened by the passing of long time supporter Peter Amico and this update is dedicated to him and his family.


Are you sharing this information?  Anyone can sign up for PULSE of NY updates at PULSE of NY Updates 



PULSE of NY wishes to thank the South Nassau Unitarian Universalist Congregation for their on-going support

Train to be a Patient Safety Advocate!

Patient Safety Advocacy Training Spots Still Open
(March 2011) Registration is open for Long Island’s community based patient safety advocate training.  The PULSE of NY, Family Centered Patient Advocacy Training to be held May 2, 2011 in Lake Success at the North Shore LIJ Center for Learning and Innovation.  Training will focus on the family, friends and community helping a patient through medical treatment including an injury, long term diagnosis or surgery as well as those who may want to think of patient advocacy as a career.
In a 1999 report by the Institute of Medicine was that every year as many as 98,000 people die in hospitals each year from preventable medical errors(1).  Many more are injured or die in nursing homes or at home.    A more recent study in July 2006 from the IOM that medication Errors Injure 1.5 Million people and cost billions of dollars annually (2).  The recommendation for improvement includes steps to increase communication and improve interactions between health care professionals and patients.
In 2006 PULSE of NY, a grassroots patient safety organization studied the role of the patient and family and the expected relationship between the patient’s community support system and the healthcare system.  Through focus groups, surveys and interviews, PULSE of NY developed the handbook “Family Centered Patient Advocacy”.  A curriculum was built around the information from that book and small group trainings have been offered since 2007.  The training has evolved to include Critical Communication(3) skills, simulations of true experiences and quizzes to test the audience’s skills.
This full day of training will cover many of the skills needed to help a family member feel empowered, understand the healthcare system better or pick up a new career of advocacy.
Training will start with education about hospital policies, standards and a history of patient safety.  Communication skills will complete the morning.  The afternoon session participants will be able to practice their skills in a simulation room with mannequin simulators and actors.  Those not participating will view the volunteers on a large screen and have an opportunity to debrief about their experience.
Discounts and scholarships are available.
Contact:  Ilene Corina:  (516) 579-4711
About PULSE:
PULSE is a nonprofit 501 (c)3 grassroots organization dedicated to raising awareness about patient safety and reducing medical errors through advocacy, education, and support. We work to empower the public to make informed decisions, increase effective communication and respect between healthcare providers and the public, and create community partnerships that will foster and ultimately lead to safer healthcare environments.

1 http://books.nap.edu/openbook.php?isbn=0309068371&page=1
3 http://www.pulseofny.org/Communication.html
 

Obama Launches Partnership for Patients

Obama Launches Partnership for Patients

The Partnership for Patients: Better Care, Lower Costs is a new public-private partnership that will help improve the quality, safety and affordability of health care for all Americans.

The Obama Administration has launched the Partnership for Patients: Better Care, Lower Costs, a new public-private partnership that will help improve the quality, safety, and affordability of health care for all Americans.  The Partnership for Patients brings together leaders of major hospitals, employers, physicians, nurses, and patient advocates along with state and federal governments in a shared effort to make hospital care safer, more reliable, and less costly.  
The two goals of this new partnership are to:
(1)   Keep patients from getting injured or sicker. By the end of 2013, preventable hospital-acquired conditions would decrease by 40% compared to 2010.  Achieving this goal would mean approximately 1.8 million fewer injuries to patients with more than 60,000 lives saved over three years.
(2)   Help patients heal without complication. By the end of 2013, preventable complications during a transition from one care setting to another would be decreased so that all hospital readmissions would be reduced by 20% compared to 2010.  Achieving this goal would mean more than 1.6 million patients would recover from illness without suffering a preventable complication requiring re-hospitalization within 30 days of discharge.   
Achieving these goals will save lives and prevent injuries to millions of Americans, and has the potential to save up to $35 billion dollars across the health care system, including up to $10 billion in Medicare savings, over the next three years.  Over the next ten years, it could reduce costs to Medicare by about $50 billion and result in billions more in Medicaid savings.  This will help put our nation on the path toward a more sustainable health care system.
Building on Local and National Work to Improve Patient Safety
In 1999, the landmark Institute of Medicine study, “To Err is Human,” estimated that as many as 98,000 Americans die every year from preventable medical errors. Despite many successful efforts, this statistic has not improved much in the following decade.  And many more patients get injured or sicker from preventable adverse events after being admitted to a hospital.  After more than a decade of work to understand and address these problems, promising examples of better practices exist, but patients too often are still injured in the course of receiving care.  At any given time, about one in every 20 patients have an infection related to their hospital care.
·        On average, one in seven Medicare beneficiaries is harmed in the course of their care, costing the government an estimated $4.4 billion every year.
·        Nearly one in five Medicare patients discharged from the hospital is readmitted within 30 days – that’s approximately 2.6 million seniors at a cost of over $26 billion every year.
·        The recently formed Innovation Center at the Center for Medicare and Medicaid Services intends to dedicate over $500 million to test models of safer care delivery and promote implementation of best practices in patient safety. CMS will also provide $500 million for a Community-based Care Transition Program created by the Affordable Care Act to support hospitals and community based organizations in helping Medicare beneficiaries at high risk for readmission to the hospital safely transition from the hospital to other care settings.
Or learn more at Healthcare.gov